People and families

"Acrodysostosis doesn't stop me dancing"

Hi, I'm Anna Louise Wood. I am 15 years old, nearly 16 - not that I'm counting or anything 😂 I have acrodysostosis type 1 with hormone...

The resilience of a survivor

My name is Brie Kearney and I am twenty six years old. I was diagnosed with Acrodysostosis type 1 with Glucose and Hormone resistance in...

Musical Maddie!

Madeline was born on November 8th 2010 in Philadelphia, Pennsylvania by emergency c-section full term at only 5lbs and 18 1/2 inches...

The boy with the best laugh in the world

My name is Peter Murphy and I grew up in a small town called Carver which is located near Cape Cod, Massachusetts. I met my wife Susan in...

Overcoming stigma to find my happiness

Hi, my name is Jillian and I have Acrodysostosis type 1. Some health issues that I have with it are short height, small hands and feet,...

Jordan's Journey

Hi, I'm Jordan (@callmejords) and I am 18. I was diagnosed with Acrodysostosis type 1 with related pseudohypoparathyroidism and many...

Meet the family behind the Facebook group

Our daughter Francesca, who we affectionately refer to as Frankie, was diagnosed with Acrodysostosis Type 2 on August 9 2015 when just...

"She doesn't let anything stop her!"

Francesca May was born August 2015 weighing 6lb 10oz and completing our family of four. Francesca was always a very quiet baby, very...